From the community

Scleroderma Walk set for May 19 in Portland

Posted April 25, 2012, at 8:06 a.m.
Last modified April 25, 2012, at 9:16 a.m.

PORTLAND, Maine -  Maine Support Group Leader for the Scleroderma Foundation New England, Lori Chason,  has scheduled the third annual Portland Walk-A-Thon To Cure Scleroderma, which will be held rain or shine with sign-in beginning at 10 a.m. Saturday, May 19, from the Back Cove Park, Preble Street Extension.

The 5K walk steps off at noon, and there is no registration fee or minimum pledge requirement to take part. Proceeds from the Portland Walk will support SFNE in fulfilling its mission of: providing educational and emotional support to people with Scleroderma and their families; funding research to find a cure; and enhancing public awareness about this disease.

Registration information, personalized web-based pledge pages through Firstgiving and other details can be obtained by calling the SFNE toll-free 888-525-0658 or visiting the Walk website: http://www.scleroderma.org/chapter/newengland/2012PortlandWalk.htm. Individuals registering before the Walk, and those setting up Firstgiving pages, will receive a free Walk T-shirt. Those registering on Walk Day, May 19, will be asked to consider making a $10 donation for a T-shirt, while supplies last.

Scleroderma is a chronic, often progressive, autoimmune disease in which the body’s immune system attacks its own tissues. The disease, which literally means “hard skin,” can cause thickening and tightening of skin, as well as serious damage to internal organs. Scleroderma occurs three to four times more often in women than in men, and it also can affect children. Its cause is not known and, presently, there is no cure.

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