Old Town teenager to mark one year seizure free

By Ardeana Hamlin, BDN Staff
Posted Nov. 15, 2012, at 11:11 a.m.

OLD TOWN, Maine — Jordyn Demont, a sophomore at Old Town High School who has epilepsy, will celebrate an important anniversary on Dec. 10. On that day, it will be one year since she had a seizure, and her friends and schoolmates will wear gray T-shirts that say, “Today I am supporting my friend Jordyn as she celebrates one year seizure free.” The shirts also will sport the Epilepsy Awareness purple ribbon, a fitting touch since November is Epilepsy Awareness Month.

The 15-year-old is the daughter of Nicole and Blaine Demont of Old Town.

When Jordyn first was trying to absorb what it means to live with epilepsy, she was 8. That summer, she attended Camp Wee-Kan-Tu in Duxbury, Mass., which is supported by the Epilepsy Foundation of Massachusetts, Rhode Island, New Hampshire and Maine. It was an experience that changed her in positive ways.

“I realized I wasn’t the only one [who had epilepsy],” she said. “There were others like me. I realized I can be myself, I can do the same activities.”

At school she plays on the field hockey, basketball and softball teams.

After Jordyn’s camp experience, she wanted to do something to enable other children with epilepsy to go Camp Wee-Kan-Tu or to help their families buy gas to get to appointments with a pediatric neurologist in Portland, so the family established the Jordyn Demont Epilepsy Foundation.

“To see her doing so well, with so much support at school, is amazing,” Nicole Demont said.

Jordyn will attend the camp for a week next summer, this time as a counselor-in-training.

“We go canoeing and kayaking, swimming, have talent shows and bonfires and watch movies,” she said.

The American Legion has donated its hall for an Epilepsy Awareness — Jordyn’s One-Year Party, 2-5 p.m. Saturday, Dec. 15. The public is invited and may wear purple if they choose.

The T-shirts Jordyn and her schoolmates will wear on Dec. 10 will be available for a donation of $5 to benefit the Jordyn Demont Epilepsy Foundation. Jordyn has a specific goal in mind for the fundraiser, in addition to helping others with camp fees and buying gas. She wants to provide a service dog to a child with epilepsy, someone who lives in the Old Town area or north of there. A service dog would alert its owner when a seizure is imminent.

For information about making a donation to the foundation or acquiring T-shirts, call Nicole Demont at 356-6135. The deadline to request a T-shirt is Friday, Nov. 23.

Donations to the Jordyn Demont Epilepsy Foundation may be sent to: Jordyn Demont Epilepsy Foundation, Penobscot County Federal Credit Union, 205 Main St., Old Town 04468.

http://bangordailynews.com/2012/11/15/health/old-town-teenager-to-mark-one-year-seizure-free/ printed on July 23, 2014