January 17, 2018
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Comments for: Respite care offers an antidote to caregiver burnout

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  • Anonymous

    The season is fall, not summer.

  • Anonymous

    Sounds like a good thing for these families. I hope the program lasts forever since their needs are never ending, especially parents of special needs youngsters.

  • Anonymous

    The thing they are not saying is that this program has changed a lot in the last 6 mths. You are no longer able to have a friend or family member watch your child or parent (whatever the case may be) Now you have to go through an agency, and have your child/parent watched by a stranger(Their employee). This is not okay for many populations,….ie….the autism spectrum population. 

    •  do you mean in order  to get reimbursement for respite care?

      • Anonymous

        I mean that it used to be that a family could choose who they wanted to have do respite care for them, now that simply is not the case! Now when a family recieves respite care for a family member that the respite worker is hired by these guys, the family can not have friends or family members do it! If u have a child with autism such as i do… It is unrealistic to have a stranger watching him! You can’t expect a stranger to be as aware of his needs as someone that knows him! Not only that but who wants a stranger watching their child? I don’t care if they have been screened- that can also simply mean not caught yet. A non verbal child needs someone that knows him or her.

        •  Thank you for drawing out your point a bit more..so important as it is a first person narrative..

          I agree with you that we have to work towards a respite care system that will support families in respite care and also maintain personal connections and positive trusting relationships which are so important across the board.

          I think there is  way to do that..perhaps through a brief period of certification by observation or something like that and periodic revisits.  You probably have your hands full just doing well what you are called to do with your child but voices like yours are so important in advocacy.  The rights answers, the right policies only come from first person narratives and involvement of people like you.

  • Respite care is so critically important for any home caregiver.  I am glad to see resources and programs developing which recognize that need .

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