Brewer family establishes fund to aid those with Lyme disease

By Ardeana Hamlin, BDN Staff
Posted May 15, 2012, at 8:24 p.m.

BREWER, Maine — After suffering for four years before she received a diagnosis of Lyme disease, 11-year-old Sally Jordan, a fifth-grader at Brewer Community School, is getting healthy again.

The ordeal of going from being bright and active and doing well in school to becoming an unhealthy child who couldn’t hold a pencil and slept most of the day, left an impression.

Sally doesn’t want anyone to go through what she went through.

“It was lonely going through this whole thing, lonely fighting the disease,” she said. “I want to raise awareness so others won’t have to suffer like I did.”

Sally has recovered enough so that she can help her father in the family store, ride horseback, take part in 4-H activities and volunteer in a soup kitchen.

Sally’s sister, Lydia, 4, was diagnosed with Lyme disease in April. Her father, Ralph Jordan, also was diagnosed with the disease in February.

When she began feeling better, Sally wrote a poem, “My Time with Lyme” and that got her thinking about what she could do to help other children and their families who are struggling with Lyme disease.

She told her parents, Ralph and Lisa Jordan of Brewer, that there ought to be a fund to help those who have the illness. That prompted the Jordans to set up Sally’s Fund, a nonprofit organization that promotes awareness and educates the public about Lyme disease, and offers support to those who are suffering from the disease.

To benefit the fund, the Jordans have organized the Tee-Off for Lyme Disease Golf Tournament set for Sunday, June 3, at Hermon Meadow Golf Course. It will feature a four-person scramble and a shotgun start at 8 a.m. Sign-in will take place at 7:30 a.m.

The entry fee is $55 per person and the registration deadline is Monday, May 21. Prizes will be awarded to the top three finishing teams.

For information, call Ralph Jordan at 561-9391 or 949-0592, or email sally7600@aol.com. To register by mail, send payment to: Ralph Jordan, 41 Allison Park, Brewer 04412.

The family also sells Fight Lyme Disease T-shirts to raise money for the fund. Adult sizes are $10, youth sizes are $8. Each shirt comes with a packet of information about Lyme disease.

Lisa Jordan credits the Lyme disease support group that meets 6-8 p.m. the first Tuesday of each month in the Bryant Moore Building in Ellsworth with helping her family learn about and cope with the disease.

For information about Lyme disease, visit mainelyme.org.

http://bangordailynews.com/2012/05/15/living/brewer-family-establishes-fund-to-aid-those-with-lyme-disease/ printed on August 30, 2014