Fundraiser to benefit girl with rare disease

Posted July 30, 2010, at 12:32 a.m.
Last modified Jan. 29, 2011, at 11:53 a.m.
BENEFIT PLANNED ? Eleven-month-old Chloe Bates of Houlton was recently diagnosed with a rare disease called Langerhan?s cell histiocytosis. A benefit supper is planned Aug. 13 for the child. Photo courtesy of Sue Bates
BENEFIT PLANNED ? Eleven-month-old Chloe Bates of Houlton was recently diagnosed with a rare disease called Langerhan?s cell histiocytosis. A benefit supper is planned Aug. 13 for the child. Photo courtesy of Sue Bates

HOULTON, Maine — It’s every parent’s worst nightmare. A child develops what first seems like a simple malady, only to find out it’s something much worse.

Such was the case for Sue Bates and Jay Gould of Houlton. Their 11-month-old daughter Chloe was diagnosed with Langerhans cell histiocytosis in May.

On Friday, Aug. 13, a spaghetti fundraising supper will be held from 4 to 6 p.m. at the Houlton Wesleyan Church for the family along with a silent auction dessert.

Almost from the day Chloe was born, Bates was suspicious something wasn’t quite right with her daughter.

“I thought she had way too much mucus as a baby,” Bates said. “And she slept all the time. I had never seen a baby want to sleep 19 hours a day. She sleeps two or three hours at a time, wakes for an hour or so and then is ready to sleep again.”

Once she was diagnosed and treatments began, Chloe settled into a more regular routine and has become more active. She still sleeps more than most children, but it’s not as extreme, Bates said.

According to the Histiocytosis Association of America’s website, the condition is a rare blood disease caused by an excess of white blood cells called histiocytes that cluster together and can attack the skin, bones, lung, liver, spleen, gums, ears, eyes, and-or the central nervous system.

“The disease can range from limited involvement that spontaneously regresses to progressive multi-organ involvement that can be chronic and debilitating. In some cases, the disease can be life-threatening.”

For information on the supper, contact Jan Neureuther at jneureuther@ghca.com.

For more information on Chloe or to donate to her cause, visit www.caringbridge.org/visit/chloebates.

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